About the Pediatric ITP Consortium
Our Mission
Research on rare disorders such as pediatric immune thrombocytopenia (ITP) can only advance with the collaboration of physicians and investigators from multiple centers. ICON is a collaborative research effort that is dedicated to improving the understanding, treatment, and quality of life of pediatric patients with ITP.
Boston Children’s Hospital serves as the coordinating study center for these efforts and provides both infrastructure and technical support. Through ICON, clinicians and researchers interested in pediatric ITP work together to initiate and conduct collaborative studies and disseminate information about ITP.
ICON is led by our Operations Committee, which is responsible for oversight of the Biology Studies Committee, Interventional Studies Committee, Patient Outcomes Committee, and Quality Improvement Committee. The Steering Committee includes all voting members of the consortium who oversee the consortium bylaws and data sharing.
ICON is pleased to be partners and work in collaboration with the Platelet Disorder Support Association (PDSA).
ICON Data Coordinating Center
The data coordinating center for ICON is located at Boston Children’s Hospital.
Rachael Grace, MD, MMSc, Director
300 Longwood Avenue
Boston Children’s Hospital
Boston, MA 02115
ICON Operations Committee
Our Operations Committee includes pediatric ITP experts throughout North America.
Rachael Grace, MD, MMSc - Co-Chair, Interventional Committee
Amanda Grimes, MD - Co-Chair, Biology Committee
Kirsty Hillier, MD - Chair, Quality and Safety Committee
Taylor Kim, MD - Co-Chair, Biology Committee
Preethi Kochhar, MD - Co-Chair, Interventional Committee
Michele Lambert, MD – Operations Committee Chair (2019-2021)
Ellis Neufeld, MD, PhD – Operations Committee Chair (2012-2014)
Cindy Neunert, MD, MSCS – Operations Committee Chair (2014-2017)
Allison Remiker, MD - Co-Chair, Outcomes Committee
Jennifer Rothman, MD – Operations Committee Chair (2022-2024)
Melissa Rose, DO - Co-Chair, Outcomes Committee
Kristin Shimano, MD - Operations Committee Chair (2024-present)
Pediatric ITP Consortium Centers
ICON joins investigators and physicians from around the country. Find out more about participating individuals and access their contact information.
Join the ICON Consortium
If you or your medical center is interested in joining ICON, please contact Rachael Grace, the director of the coordinating center, by emailing icon-itp@chboston.org.